Read time: ~ 7 minutes

As you know, Paediatric Project ECHO offers live sessions that include a didactic and case presentation in the areas of paediatric Obesity Management, Complex Care, Pain Management and Palliative Care. We have collated guidelines that were mentioned and recommended in our Paediatric Project ECHO session among a variety of specialized conditions for your convenience.

For Healthcare Professionals:

1. Guidelines for Adolescent Depression in Primary Care
2. Canadian 24-hour Movement Guidelines for Children & Youth
3. Serious Illness Conversations Guide
4. Managing Headache Pain
5. A Guide to Children’s Palliative Care
6. The Palliative Response – Guidelines Pronounement
7. Clinical Guidelines for Management of Epilepsy in Adults in Children
8. NASPGHAN / ESPGHAN Guidelines
9. BCCCDC COVID-19 Language Guide

For Patients and Families:

1. How to Use Irritability Strategies to Help Your Child with Autism
2. Low FODMAP
3. Zero to Three: Tips for Families – Coronavirus

Guides for Healthcare Professionals:
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Guidelines for Adolescent Depression in Primary Care (GLAD-PC)

(Review PDF)

This guide was mentioned in the Mind-Body Connections session by Dr. Melissa Young. This toolkit was published by the REACH Institute and offers information, recommendations, educational resources, and tools to aid in the management of adolescent depression in primary care. It was designed to be user-friendly and applicable to real-world primary care practices.

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Canadian 24-hour Movement Guidelines for Children & Youth

(Review PDF)

This guide was mentioned in our Exercise Counselling and Prescription in Paediatric Chronic Disease by Dr. Barbara Cifra. This is a four step guide for children and youth ages 5 – 17 years old, created by Canadian Society for Exercise Physiology (CSEP). The Canadian 24-Hour Movement Guidelines for Children and Youth are the first evidence-based guidelines to address the whole day.

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Serious Illness Conversation Guide

(Review PDF)

The guide was created by BC Cancer Provincial Health Services Authority and was mentioned in the session on Trauma Informed Care by Kathy Netten. This guide provides a 7-step frame work to navigate serious illness conversations. It also includes examples of patient-tested language.

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Managing Headache Pain

(Review PDF)

This guide was mentioned in the Headache Pain session by Dr. Daune Macgregor. This guide provides recommendations around sleep, diet, hydration, exercise, technology use and nutriceuticals for managing headache pain. The guide was created by the The Hospital for Sick Children: The Division of Neurology and the Department of Social Work in collaboration with Women’s College Hospital.

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A Guide to Children’s Palliative Care

(Review PDF)

This guide was mentioned in the Palliative Care Emergencies session by Dr. Gregorio Zuniga. This guide was published by Together for Short Lives, a UK charity for children and families living with a life-threatening conditions. This guide focuses on essential information about paediatric palliative care, service planning and delivery, the workforce, education and training and research and evidence-based practice.

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The Palliative Response – Guidelines for Pronouncement

(Review PDF)

This guide was mentioned in the session Preparing for death and the time that follows session by Lori Ives-Baine & Francis Macapagal. The guide provides steps around the preparation before death pronouncement, assessing the immediate situation, entering the room, follow-ups, death notes and death certificates. This guide is housed on the Promoting Excellence in End-of-Life Care website.

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Clinical Guidelines for Management of Epilepsy in Adults and Children

(Review Website)

This guide was mentioned in the Refractory Epilepsy session by Dr. Elizabeth Donner. This website offers recommendations that were developed to improve the quality and consistency of epilepsy care in Ontario. The guide includes information on:

• Anti-seizure drugs
• Stigma experienced by people with epilepsy
• Psychogenic non-epileptic seizures (PNES)

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NASPGHAN / ESPGHAN Guidelines

(Review in Journal of Pediatric Gastroenterology Nutrition publication)

This guide was mentioned in the Gastroesophageal reflux in children with medical complexity by Jas Otal. These figures (6 & 7) are from an article published in the Journal of Pediatric Gastroenterology Nutrition. It serves as an update for the 2009 clinical guidelines for the management of Gastroesophageal Reflux Disease Disease (GERD) in infants and children.

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BCCDC COVID-19 Language Guide

(Review PDF)

This guide was mentioned in the Everyday Ethics session by Dr. Catherine Diskin. These guidelines were published by the BC Centre of Disease control (BCCDC) for the purposes of ensuring that all individuals were included and represented in a more equitable manner where individuals are more open and receptive to COVID-19 messaging. The guide focuses on principles to practice inclusive language such as:

• The Platinum Rule
• People/Person First Language
• Choice
• Cultural humility
• Trauma and violence informed care

Guides for Patients and Families:
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How to Use Irritability Strategies to Help Your Child with Autism

(Review PDF)

This guide was mentioned in the Special considerations for pain in children with severe neurological impairment session by Dr. Alvin Loh. This guide provides steps for parents and caregivers caring for children with autism on how to:

• Support their child
• Encourage positive behavior
• Decrease irritability

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Low Fermentable Oligosaccharides, Disaccharides, Monosaccharides And Polyols (FODMAP) Diet Guide.

(Review PDF)

This session was mentioned in the Abdominal Pain session by Lindsay Craddock. This guide is from the Hamilton Health Sciences Patient Education Library. This guide provides education on what a FODMAP diet is, how a low FODMAP diet can help individuals with particular digestive symptoms and tips on how to adhere to the diet.

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Zero to Three: Tips for Families – Coronavirus

(Review on Zero to Three Website)

This guide was mentioned in the Parenting and Obesity Management session by Dr. Catherine Birken, Melanie Gelfand and Esther Persaud. This guide offers families age-appropriate responses to common questions, self-care tips, and activities for children in quarantine. This guide is offered on the Zero to Three website, an initiative dedicated to ensuring children have a strong start (ages 0 – 3) in life.

Do you have more guideline recommendations? Let us know by emailing us at project.echo@sickkids.ca or join us at our next session!

Paediatric Project ECHO may provide image links or text links to other linked websites. Linked websites are not under our control and we are not responsible or liable for the contents of any linked site or any link contained in the linked site. Online resources are not a substitute for the personalized judgment and care of a trained medical professional.