Mental Health Supports for Parental Caregivers for Children with Medical Complexity
Learning Objectives
- Understand unique challenges of parents and caregivers of children with medical complexity (CMC)
- What is known about the mental health of parents of CMC?
- Stress and Distress
- Psychiatric Illness
- Which interventions may be helpful to support parents of CMC?
Dr. Elizabeth Wright, MD, Women’s College Hospital
Dr. Elizabeth Wright graduated from the University of Toronto Psychiatry Residency Program in 2018. Since then, she has worked as a Perinatal Psychiatrist in the Reproductive Life Stages program at Women’s College Hospital, engaging in clinical and research activities related to new parent mental health and the impacts of developmental trauma. More recently, in partnership with Sick Kids, she has been seeing parents of Complex Care children for the last 6 months for psychiatric consultations and support to the team.
Resources Mentioned in Session
- SibShops: Support for Siblings of children with medical complexity
- The Cost of Care Index: a case management tool for screening informal care providers
- CARING FOR THE CAREGIVER: EXPLORING THE EXPERIENCE OF CAREGIVING FOR A CHID WITH MEDICAL COMPLEXITY
- A national profile of caregiver challenges among more medically complex children with special health care needs
- Life course impacts of parenting a child with a disability
- Financial and Social Hardships in Families of Children with Medical Complexity
- Intense parenting: a qualitative study detailing the experiences of parenting children with complex care needs
- From crisis to self-confidence and adaptation; Experiences of being a parent of a child with VACTERL association – A complex congenital malformation
- Cardiovascular Disease Among Women Who Gave Birth to an Infant With a Major Congenital Anomaly
- Hidden consequences of success in pediatrics: parental health-related quality of life–results from the Care Project
- Feeling of Burden, Psychological Distress, and Anxiety among Primary Caregivers of Children with Home Enteral Nutrition
- Parenting stress among caregivers of children with chronic illness: a systematic review
- Psychiatric disorders in parents of children with autism: a meta-analysis
- Meta-analysis of comparative studies of depression in mothers of children with and without developmental disabilities
- Health Outcomes of Parents of Children with Chronic Illness: A Systematic Review and Meta-Analysis
- Identifying mothers of very preterm infants at-risk for postpartum depression and anxiety before discharge
- Psychosocial experiences of parents of infants with hypoplastic left heart syndrome in the PICU
- Posttraumatic stress disorder in mothers of children who have undergone surgery for congenital disease at a pediatric surgery department
- Posttraumatic stress disorder in children and their parents following admission to the pediatric intensive care unit: a review
- Mental health aspects of emergency medical services for children: summary of a consensus conference
- Parent mental health and neurodevelopmental outcomes of children hospitalized in the neonatal intensive care unit
- Traumatic stress in parents of children admitted to the pediatric intensive care unit
- Prevention of traumatic stress in mothers with preterm infants: a randomized controlled trial
- Parent Coping Support Interventions During Acute Pediatric Hospitalizations: A Meta-Analysis
- Children with medical complexity: a scoping review of interventions to support caregiver stress
- Parenting in a crisis: conceptualising mothers of children with cancer
- Psychological interventions for parents of children and adolescents with chronic illness
- Improving health, wellbeing and parenting skills in parents of children with special health care needs and medical complexity – a scoping review
- The effect of caregiving on women in families with Duchenne/Becker muscular dystrophy
- The relationship between acute stress disorder and posttraumatic stress disorder in the neonatal intensive care unit
- Mindfulness-based stress reduction for parents of young children with developmental delays: implications for parental mental health and child behavior problems
- Families of Children With Medical Complexity: A View From the Front Lines
- Paternal psychiatric disorders and children’s psychosocial development
- The effects of postnatal maternal depression and anxiety on the processing of infant faces
- Depressed mothers’ speech to their infants and its relation to infant gender and cognitive development
- Prevention of Traumatic Stress in Mothers With Preterm Infants: A Randomized Controlled Trial
Session Materials
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